I just found the website of a new international charity that I think you might be interested in. It is called 'The Hummingbirds' Foundation for Myalgic Encephalomyelitis' and their website is available at this link:
www.hfme.org
The site explains what M.E. is, and the long history of M.E. as an acute onset organic neurological disorder which occurs in epidemic and sporadic forms and that can be extremely severe (or even fatal).
The site also explains the difference between M.E. and CFS, including why a diagnosis of CFS is always a misdiagnosis.
The site includes information for M.E. patients about how to cope with M.E. plus a comprehensive symptom list, a treatment section, research section, a M.E. ability scale, and much more. There is also a lot of information on how M.E. patients can play their part in participating in activism to start to change things for M.E. patients so that they can be treated in just the same way as are those with similar neurological diseases such as MS.
The site also includes important resources that are vital for everyone given a 'CFS' misdiagnosis that doesn't have M.E. These patients also need to be correctedly diagnosed and treated finally.
There are also sections of the site aimed at doctors, carers, friends and family of M.E. patients and the public.
Once you've seen the site, please pass this email on to any and all M.E.sufferers and anyone given a diagnosis of 'CFS' - and anyone else that may need this information - and help to get the word out.
janet smart
Posted on 1 Oct 2009 10:20 am
Hello,
I just found the website of a new international charity that I think you might be interested in. It is called 'The Hummingbirds' Foundation for Myalgic Encephalomyelitis' and their website is available at this link:
www.hfme.org
The site explains what M.E. is, and the long history of M.E. as an acute onset organic neurological disorder which occurs in epidemic and sporadic forms and that can be extremely severe (or even fatal).
The site also explains the difference between M.E. and CFS, including why a diagnosis of CFS is always a misdiagnosis.
The site includes information for M.E. patients about how to cope with M.E. plus a comprehensive symptom list, a treatment section, research section, a M.E. ability scale, and much more. There is also a lot of information on how M.E. patients can play their part in participating in activism to start to change things for M.E. patients so that they can be treated in just the same way as are those with similar neurological diseases such as MS.
The site also includes important resources that are vital for everyone given a 'CFS' misdiagnosis that doesn't have M.E. These patients also need to be correctedly diagnosed and treated finally.
There are also sections of the site aimed at doctors, carers, friends and family of M.E. patients and the public.
Once you've seen the site, please pass this email on to any and all M.E.sufferers and anyone given a diagnosis of 'CFS' - and anyone else that may need this information - and help to get the word out.
Knowledge is power!