Spinal Muscular Atrophy Type 1: Treatment

Part of Question for Urgent Oral Answer — Health – in the Northern Ireland Assembly at 3:30 pm on 24th January 2017.

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Photo of Andy Allen Andy Allen UUP 3:30 pm, 24th January 2017

I take this opportunity to thank the Member for North Belfast for bringing this very important matter to the Floor and the Minister for coming here today. Minister, I have also written to you on this matter, and, indeed, I am aware that your officials have been to see one of the families who engaged with me. From my engagement with the clinicians, it is my understanding that it is, indeed, resources and infrastructure that are a barrier to the other three families being offered this procedure. If that is the case, will you have engagement with the health trust to ensure resources and infrastructure are in place to offer this procedure to the other three families?