Motion A

Part of Data (Use and Access) Bill [HL] - Commons Reasons – in the House of Lords at 3:45 pm on 19 May 2025.

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Photo of Lord Winston Lord Winston Labour 3:45, 19 May 2025

My Lords, I wonder, with regard to sexuality, whether the Minister has considered those children who are, unfortunately, born with perhaps an ovary and a testis, or with genitalia which are difficult to identify. How do those become categorised under this regulation?

The second thing is that the definition of science proposed in the Bill is not science; it is technology, and there is a big difference, as I explained in the last speech. Science involves knowledge, and we do not know that knowledge until we have the knowledge. We cannot act on that knowledge until we know what the knowledge is. That is hugely important and, as the noble Lord, Lord Vallance, who is not now in his place, said, this has the risk of holding up research which is really necessary.

Before I close, I mention just one example of this to the noble Lord, Lord Clement-Jones. He made a rather derogatory point about my comment on infection. I did not point out to him that, when I was seven, my father came home with a mild bronchial infection, which went on to be pneumonia. After six months with various inadequate antibiotics—because they did not understand the dosage—penicillin did not work and he died of a brain abscess when I was just eight. That is an example of where research is needed continuously, even when we do not know what we are doing. It is very important to understand that. This Bill and its wording do not fully define science satisfactorily, certainly to scientists.

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