Mental Health Bill [HL] - Committee (2nd Day) – in the House of Lords at 4:30 pm on 20 January 2025.
Lord Scriven:
Moved by Lord Scriven
33: Clause 4, page 9, line 40, at end insert—“125FA Report: sufficient commissioning services for people with autism or learning disabilities(1) Within four months of the day on which the Mental Health Act 2025 is passed, the Secretary of State must lay before Parliament a plan to allocate sufficient resources for commissioning services regarding the treatment and detention of autistic people and people with learning disabilities to ensure operability of provisions in this Act.(2) The plan must include—(a) revised assumptions of the number of autistic people and people with learning disabilities who may require detention under this Act;(b) the actions that the Secretary of State will take to ensure community services are available to meet demand after the 28-day detention period;(c) plans for data collection to support commissioning sufficient services;(d) plans to allocate appropriate resource to ensure operability of services, including, but not limited to, financial resource;(e) plans to ensure that responsible bodies and individuals receive the necessary training to carry out support, diagnostic, and treatment plans.”Member's explanatory statementThis Amendment requires the Secretary of State to present a plan within four months to ensure sufficient services, resources, data, and training are in place to support autistic people and those with learning disabilities under the Act.
Lord Scriven
Liberal Democrat Lords Spokesperson (Health)
4:45,
20 January 2025
This group of amendments has to do with learning disabilities and autism, and the implementation of the Government’s recommendations, particularly on the change in detention criteria. My Amendment 33 is probing; I shall come to its details shortly. The Committee needs to look into this subject, because many times before in government policy we have seen a good aim and good intentions of moving care into the community, but all too often the facilities have not been there, and people have ended up in crisis.
I tabled Amendment 33 to probe the Government’s staged approach to ensure that community facilities are in place before the change in detention happens, and to understand their timing. On page 72 of the impact assessment, the suggestion is that the change will not happen until the community facilities are in place. That is good, but that could be five, 10 or 15 years away, so the Committee needs to understand the Government’s approach to timing.
Amendment 34, tabled by my noble friend Lady Barker, and the amendment tabled by the noble Earl, Lord Howe, cover mandatory training for medical staff and others associated with looking after people with learning disabilities and autism, to detect the signs, so that people are not missed and put into detention.
My Amendment 33 would create an obligation for the Government to lay a costed plan for sufficient services before Parliament within four months of the passage of the Bill. The four-month period is important, because we really need to understand the Government’s intentions on timing. The change in detention criteria for autistic people and people with learning disabilities is a vital change in the Bill, to ensure that people are not inappropriately detained but are supported in the community instead.
As I have said, success depends on there being sufficient services in each area across the country to meet the needs of autistic people and people with learning disabilities. Based on the impact assessment, we know that the Government do not plan to enact those, so it is important that when the Minister replies, she lets the Committee know exactly what the timing is and what the Government’s assumed plans are.
In the equality impact assessment, there are dates for both funding and implementation, which seem to be at the same time. As a former NHS manager, I can say that people cannot start a service involving such a change and receive the funding in the same year. There has to be upfront funding to enable people to plan the services over time. Otherwise, the services are not there, and staff run round trying to get services when people are in distress. It is important to understand that.
Additionally, as the NHS long-term plan target to reduce the number of detentions of autistic people and people with learning disabilities has been missed, there are no active targets to get people out of hospitals. My amendment tries to put in targets to hold the Government and the services to account on ensuring that people are not inappropriately detained.
It is important to have a comprehensive action plan, which is what my amendment seeks to do, and to find out exactly how the Government intend to build and fund those community services moving forward. Additionally, this must include new targets to reduce the number of detentions of autistic people and people with learning disabilities. The timelines for building this support will also be crucial if the Government are to meet the expected 2026-27 commencement date for the new detention criteria for autistic people and people with learning disabilities.
I hope that the Minister will fully brief the Committee so we can make an informed decision about not just the thinking of the Government but the detailed implementation around community services with the change of criteria. I look forward to hearing noble Lords speak to their amendments on the provision of training and the appropriateness of medical practitioners’ expert knowledge of learning disabilities and autism. I beg to move.
Baroness Barker
Liberal Democrat Lords Spokesperson (Voluntary Sector), Deputy Chairman of Committees, Deputy Speaker (Lords)
My Lords, I shall speak to my Amendment 34. As I do so, I extend my condolences to the noble Baroness, Lady Hollins. We miss her very much today. She was extremely helpful to me only a few days ago when we were discussing the subject of this amendment, so I hope I do her a lot of justice with this.
We have heard time and time again that people with learning disabilities and autism find themselves on the wrong end of diagnoses made by practitioners with the best of intent, quite often when people are at points of severe distress, that are inappropriate because the people making them have not perhaps had the degree of experience and knowledge of working with people with learning disabilities and autism as they would otherwise have done.
We started to discuss last week that, while there are mental disorders for which detention in the sorts of facilities that we fund in acute hospitals in the NHS is right and appropriate, there are also some people for whom detention in those circumstances is absolutely not; it is an aggravating factor. Therefore, in my amendment I am seeking to address that issue: not just the competence of the people making decisions about detention and treatment but also the confidence with which they, as professionals, can approach the jobs that they are increasingly being required to do. Knowledge and understanding of learning disability and autism is expanding all the time. We now have a greater number of adults than ever before who, at stages in later life, are being diagnosed as being autistic, and I am quite sure that quite a number of those people have been subject to misdiagnosis.
The particular thing that I want to focus on is training for people who are responsible for detention and high levels of treatment. Noble Lords will be aware of the tragic case of Oliver McGowan, a young man with learning disabilities who was inappropriately treated and died. There has been an amazing campaign by his mother to ensure that that does not happen to other people by making sure that anybody who is involved in the provision of mental health services has undergone appropriate training and understands learning disabilities and autism.
My understanding from Oliver’s mother is that there are three tiers of training. Tier 1 is a level of training which is required for all people who work generally with people with learning disabilities and autism. They need to have this general level of awareness. Tier 2 is for health and social care staff and others with responsibility for providing care and support for a person or people with learning disabilities or autistic people but who would seek support from others in a complex management and decision-making process. They would be part of a team referring up to others. Tier 3 is specialist training for professionals who have a high degree of autonomy and are able to provide care in very complex situations, which might include people with learning disabilities and autism.
The training appears to be sequential. You have to have completed tier 1 training in order to go on to tier 2 and then tier 3. Tier 1 is an e-training module which takes about half a day. As far as I understand it, about 1.5 million people have done that. That is a good thing: we are getting to a greater basic understanding of learning disability and autism by many people across the NHS going about doing their jobs. Tier 2 is a one-day intensive training programme, and that has not gone so well. There have been problems with its implementation, and it is not clear how many people have undergone that training. There are also some quite considerable questions about the quality and scope of that training.
Tier 3 is not part of the Oliver McGowan programme, although it is the most relevant to this Bill. As of December 2024, the Department of Health website makes absolutely no mention of tier 3 training at all. Can the Minister tell us where the development of that training is up to, and who is responsible for ensuring that the content of it is suitable? Is it sufficiently developed for people who are having to make very difficult decisions, particularly around detention of people who are quite often in a state of disturbance at the point at which that decision is taken? If we do not follow up on this tier 3 training, then we are going to carry on in the situation where we are now, where we know that people are being wrongly diagnosed by people who, perhaps, should not be expected entirely to understand them because their professional training up to this point has largely not included such people.
The noble Baroness, Lady Murphy, and I bow to her superior knowledge, very much made the case to us last week that we are talking about different types of mental disorders and very different specialisms across the mental health services. I am therefore asking that anybody who is in a position of making the decision to detain—and let us remember that people are making decisions to detain not just under the mental health legislation but also, at times, under the mental capacity legislation—should be appropriately trained. That is why I put down my amendment which, I admit, is not perfect, but I hope that the Minister might take some of my point and my intent and that we might take this forward together.
Baroness Browning
Conservative
My Lords, I shall speak to my Amendment 42A in this group, which follows on from the two previous amendments from the noble Lord, Lord Scriven, and the noble Baroness, Lady Barker, particularly the details that the noble Baroness has gone into about the need for training and expertise for people who are dealing across the piece with those with autism and learning disability and, importantly, when those clinicians take the decision to admit somebody. As we know, one of the problems that is facing us and why it is so important that these issues have come forward in this particular Bill is because there have been so many inappropriate admissions where people have been detained for so long that it has become a scandal.
In my 32 years, in both Houses, I cannot think how many times I have contributed to debates about the need to release people—to get people with autism and learning disabilities out of the detention in which they find themselves, sometimes for years and years. Each time we have these debates, we say, “We must do something about this”. This is the Bill that can do something about it.
Following on from what the noble Baroness, Lady Barker, has so ably described to the Committee about the tiering of training, Amendment 42A perhaps goes a step further. It would amend the Bill to ensure that one of the two registered medical practitioners who recommend that someone be admitted for treatment is an expert in autism and learning disability, where these are either diagnosed or suspected. It is quite common, particularly with adults, for somebody to be admitted, only for the autism to be diagnosed for the first time in their lives once they are in a medical environment.
It is important that that expertise, specifically from one of the two registered practitioners, is in the Bill. We had a bit of an exchange in last week’s debate about just how expert they need to be. However, I will put on the record my belief that a general psychiatrist—who has not had that specific training and does not have a living, working expertise that involves knowing and understanding people with either autism or a learning disability—will almost certainly make the wrong decisions and, even worse, as I have personally witnessed, the wrong diagnosis.
It is not uncommon—I use the word “uncommon” deliberately—that, when somebody on the autism spectrum is admitted and the diagnosis of autism is either not accepted or not recognised for what it is, they are treated for some other diagnosis: all too commonly, schizophrenia. I have witnessed what then happens when the clinician chooses from a list of medications to treat someone who is not schizophrenic. They try one drug; it clearly does not work; they then try another—and work their way through the list.
I remember a father showing me what happened to his adult son, who was a very able artist. He was misdiagnosed with schizophrenia, and I have seen the paintings that this man produced after somebody had tried to go through the list to find the right drug for him. It is a scandal; that is why I believe that this should be included in the Bill.
Lord Beamish
Labour
5:00,
20 January 2025
My Lords, I will speak to Amendment 33 in the name of the noble Lord, Lord Scriven. If this Bill is a success, we shall, I hope, see fewer people with autism and learning difficulties detained under the Mental Health Act. However, the noble Lord’s amendment goes to the heart of the problem of resources. The current system is broken. It is a market system, which ends up with a lot of people finding themselves detained in facilities far from home, and getting out of that system can be very difficult.
The collection of data will be important: first, to find out how many people are being detained. Having spent 23 years in the other place and having been a passionate advocate for mental health, I always found that data is one thing that is never really kept. It is kept between the Department of Health and various other healthcare providers. Getting that visibility for the numbers we are talking about will be very important.
We need to be honest that, in the entire mental health debate, people with autism and learning disabilities have been overlooked. To get this right, having proper community-based facilities will be very important, but it will be expensive. The market model we have at the moment means that lots of private companies provide care at very high cost, and commissioners tend to have to commission only from certain providers. This leads to a shortage of supply and prices going up. The Minister needs to spell this out.
I understand what the noble Lord said in moving the amendment, but it is important to have visibility of not only the numbers but where the community facilities are going to be. New Clause 125FA(2)(b) in the amendment says the Secretary of State should ensure that community services are available to meet demand after 28 days. If you speak to any commissioner at the moment, they will tell you that that is completely unrealistic. I accept that it was put in the amendment for debate, but that is an aim we should be trying to get to in supporting people in the community. I have seen sad cases of people being stuck in the system. With the best will in the world, and I think there is cross-party support for this, we should not have people with learning disabilities and autism stuck in the system for as long as they are, with no way of getting out. I accept that the Bill aims to give a voice to those individuals, but without the resources to match, they will still go round the merry-go-round of different funders.
Another important issue that we need to highlight is the lack of support staff in the community for dealing with people with learning difficulties and autism. That is not seen as a priority at college. We need to put more emphasis on making it an attractive career and on the fact that it is vitally needed and will make a real difference to the individuals concerned. Training is important, but so is getting people into the service in the first place. I accept that the noble Lord is not going to press the amendment, but it goes to the heart of most of the matters in the Bill. We are deluding ourselves if we think the good and well-intentioned things in the Bill will be delivered without the resources to do so; they will not. The one without the other will lead to people still being detained when, in a modern society like ours, they really should not be.
Baroness Murphy
Crossbench
My Lords, I give my strong support to the noble Lord, Lord Scriven, asking for a road map, which I think is the political phrase we use now, to get to where we want to be. I remind him that, back when the then Government came in in 1987, we had a documented timetable for closing the learning disabilities hospitals but that never happened; it went too slowly. So, we have left people stranded in various independent sector and NHS facilities, partly, to be honest, because the Department of Health took its eye off the ball as to what was happening to people in long-stay care and just stopped looking. So I agree that we need some kind of timetable; otherwise, the Bill becomes simple aspirations, as we have already said.
Unfortunately, it is not just autism and learning disabilities that require special training. In a lot of areas of mental disorder, people get inadequate training in subspecialties when they are studying the general psychiatric stuff. Psychiatric nurses do not get enough, either. I agree that there are issues here that require a special target, but at the moment they do not get it, so I support that as well.
On the experience of the noble Baroness, Lady Browning, of course it is true that there are an awful lot of bad psychiatrists around. There are bad physicians and bad surgeons—not the noble Lord, Lord Kakkar, before he punches me on the chin. We should not say “bad”; I would say “not the best”. A friend of mine was visited by a community psychiatrist in old age psychiatry about a month ago. I asked his partner how it went, and he said, “Well, he was in and out in 15 minutes. He’d got 10 assessments he was going to do in people’s homes around south Norfolk in that time”. That was a totally inadequate amount of time to get a history from relatives, to get an understanding of what was going on in the home situation and to understand the problems this person was experiencing. I was shocked, but I was told not to be because it happens all the time that there is an inadequate length of time for people’s assessment.
It is hardly surprising that diagnoses are wrong and that people end up with the wrong prescriptions. It is deeply regrettable, but this will happen for as long as community services are underresourced. As we have heard from all around the Chamber, you can put as much in place as you like, but if it is underfunded, has the wrong facilities or is too far away from where people live, it just will not happen. We need a road map, and we need to know when these facilities will be made available, because the rest of it cannot happen until they are.
Baroness Bennett of Manor Castle
Green
My Lords, I will speak to my Amendment 152. We have already had a rich debate, concentrated on certain areas. This amendment deals with a somewhat different area, which is why I wanted to include it at the end. We have talked quite a bit about training and research and the link between the two. The noble Lord, Lord Scriven, said in introducing this group that it was all about autism and learning difficulties, but this amendment also covers mental health, for the interests of clarity.
This is a probing amendment, but there is an argument for doing what it calls for, which is having a report to Parliament, two years after the Bill is passed and then every three years thereafter, about the provision for and progress in research, and the transfer of research findings, in mental health and autism and learning difficulties. This would enable Parliament to keep a check on how much resource is being put into this area and, crucially, how much knowledge is transferred into practice. It would also be a really useful tool for informing Parliament about what is an extremely fast-changing area.
It is worth noting that mental health and disabilities are areas in which research is not just redefining our understanding but often entirely demolishing old models and forcing a restart from the basics. We are also seeing a change in approach, in which I am very pleased to say that there is an increased focus on ensuring that experts by experience can guide and have input into research directions in a way that certainly was not true in the 20th century.
I note, for example, an interesting study from the University of Stirling last year, which spoke to people in Scotland—though I have no doubt this applies more broadly. It looked at how research in autism currently tends to be directed towards biological studies and a search for treatments and cures, but autistic people said that they would prefer a focus on a good quality of life, and that they should have a real say in the research directions. They were concerned that continuing even now are ableism, objectification, and other othering approaches in research directions. I spoke on the previous day in Committee about the failure to apply the social model of disability to learning difficulties and autism. That is very much the case. I hope that that will change, which would change what we should be researching and how we should be training people.
Moving to perhaps more comfortable ground for many people, I note that there is a replication crisis across many areas of research. That is particularly true in the mental health space, where, unsurprisingly, there has been a recent dawning that conducting a great deal of research on US college students does not necessarily produce findings that can be replicated all around the world in all sorts of different research conditions. For example, with Alzheimer’s disease, are amyloid plaques a cause, a symptom or simply correlated? I have no idea, and I doubt that anyone can say, with their hand on their heart, that they know either. This an area in which the continuous failure of medical trials has shown our lack of knowledge.
Just this week, an interesting study in Translational Psychiatry found a very close link between the bacteria in our mouths and mental health. I spoke at Second Reading about the gut-brain axis, and these researchers are talking about the oral-brain axis. Their analysis found notable differences in the composition of oral bacteria, suggesting that the oral microbiome may play a significant role in mental well-being.
Last year, there was a study in the UK on avatar therapy for people who hear voices, also known as auditory hallucinations. That was said to provide potentially life-changing results for people with psychosis. It could reduce both the voices heard by an individual and the distress that these voices can cause. This is interesting, breakthrough research, using a different kind of technique that someone who was trained 20 or 30 years ago is extremely unlikely ever to have been exposed to—we would hope that they are keeping up, but there is so much out there from so many different directions.
This amendment aims to ensure that, given that we have brilliant researchers making real progress, Parliament knows about that, it is incorporated into treatment, and we are really keeping up. As we heard earlier in the debate on this group, we are not at the moment.
Baroness Tyler of Enfield
Liberal Democrat
5:15,
20 January 2025
My Lords, I want briefly to make a couple of comments on this important group. As everyone has acknowledged, an absolutely vital change to the Bill is that, in the future, people with learning disabilities and autism will not be detained by the Bill and their needs are to be met in the community. I am sure we can all agree on and gather around that.
The noble Lord, Lord Beamish, made the point that, far too often in the past, people with learning disabilities and autism have been overlooked. I see the Bill as a real opportunity to do something substantive about that. That is why I note some of the amendments we have heard about in this group—certainly those in the names of my noble friends Lord Scriven and Lady Barker, and others—about the importance of having properly trained staff with up-to-date knowledge and expertise, as the noble Baroness, Lady Bennett, has just mentioned.
For any of this to happen, it is important that there is a proper plan, that is costed; the resources need to be available, and properly trained staff with up-to-date expertise need to be available in the community. To ensure that there is some sort of accountability around all this, I reiterate the question that my noble friend Lord Scriven asked the Minister: when will we see new targets—we have not got any at the moment—to reduce the number of detentions of people with learning disabilities and autism? It would be helpful to know that those targets will be put in place and that there is some way of monitoring the progress on all the important things we have been talking about in this group.
Lord Patel
Crossbench
I agree with what has been said: we need a definitive plan for how things will work out. We cannot rely on it being in five or 10 years because, as the noble Baroness, Lady Murphy, said, it then just becomes an ambition rather than a target to achieve.
I support the Amendment of the noble Baroness, Lady Browning, which strongly asks that the people who look after children with autism and learning disabilities are properly assessed by properly trained and accredited people. We know that, currently, children are ending up in detention inappropriately because they are assessed to have a psychiatric condition such as schizophrenia—as the noble Baroness, Lady Browning, said—when, although they might have some psychiatric sub-condition, they fundamentally have autism or learning disability problems.
I am sorry that the noble Lord, Lord Adebowale, is not here to speak to his Amendment 150, which asks quite powerfully for a clear plan to be laid out, with resources tied to it, to achieve the ambitions there are in the Bill. I would have supported his amendment probing the Minister as to how resources will be allocated to achieve the ambitions for those targets to be met.
Lord Kakkar
Crossbench
My Lords, I support Amendment 42A in the name of the noble Baroness, Lady Browning, and I ask the Minister what justification there could be for refuting the amendment. It seems entirely appropriate, and indeed essential, that in taking such an important, far-reaching decision, one of the two registered medical practitioners who is responsible for that decision, taken at one point in the management of the natural history of disease in that individual, has the specialist skills and training to be able to make an appropriate assessment, one that will affect interventions on all future occasions for that individual.
I hope that, in addition to accepting this important principle, the noble Baroness might outline how His Majesty’s Government will go about ensuring that the development of such medical practitioners and their training is adequately resourced to ensure that, in future, as a result of the Bill being enacted, what we have seen in the past, regrettably on repeated occasions, does not remain the norm for managing patients with autism and learning disabilities.
Earl Howe
Shadow Deputy Leader of the House of Lords
My Lords, I shall be very brief, because other noble Lords have already eloquently articulated the arguments that are almost self-evident about the importance of services for people with autism or a learning disability and, in particular, the importance of training all staff who may find themselves working in those fields. I agree very much with the remarks of my noble friend Lady Browning and the noble Lord, Lord Scriven, and I was particularly interested in the research mentioned by the noble Baroness, Lady Bennett of Manor Castle, which brings us into a whole new dimension, I think, in this debate.
The need to train all healthcare staff, no matter what role they perform or which part of the health service they serve in, should surely be taken as read. This should be training both in the initial identification of those with autism or a learning disability and in the skills needed to handle such individuals with the necessary sensitivity and insight. I was interested in what the noble Baroness, Lady Barker, had to say about that. The behaviour of a person who is on the autistic spectrum can be baffling to anyone who has had no experience of it, and because of that it can be open to misinterpretation. A situation of that kind carries dangers, which is why it is so necessary for healthcare staff to know how to react in a way that will make the situation better and not worse.
This is not the first time that we have debated this important topic. I believe we may be told by the Minister that mandatory training in these areas is already provided for in Section 20 of the Health and Social Care Act 2008. The provision reads:
“Regulations under this section must require service providers to ensure that each person working for the purpose of the regulated activities carried on by them receives training on learning disability and autism which is appropriate to the person’s role”.
That broad provision was inserted into the 2008 Act thanks to an Amendment which your Lordships approved three years ago, during our debates on the Health and Care Act 2022.
So, a provision on training is already enshrined in law; the problem is that we have no way of knowing the extent to which it is being implemented in practice. Hence, Amendment 145 would require the Secretary of State to publish a review on mandatory training for all persons who treat patients with learning disabilities and autism under the 1983 Act and consult as necessary to determine the extent to which health service staff are actually in receipt of such training. I see this amendment as perhaps a logical partner to Amendment 152 in the name of the noble Baroness, Lady Bennett, and indeed, in his absence, to the amendment of the noble Lord, Lord Adebowale.
While the vast Majority of people who provide care to people with learning disabilities and autism do so with compassion and professionalism, we have seen a number of failings in care for people with those conditions. At the same time, detention will continue to be necessary in some cases where a patient with autism or a learning disability is suffering from a separate mental health condition. In all those cases, regardless of the context in which a person presents, we need to have confidence that the people providing care have the training they need to deliver that care sensitively, and above all, capably. I would venture to say that the people who need to have most confidence in the system apart from the person receiving the care are the parents or nearest relatives of that person. Hence, I believe we need more transparency on how well the system is working than we have currently.
Incidentally, one of the things that could come out of a review of training is an opportunity to look at the current processes for whistleblowing. An important aspect of improving standards of care is to have a system of accountability that includes listening to everyone in the sector, from the most senior staff to the most junior. No one should be afraid to speak up when they see something going on that does not look right, and I should be very grateful to hear what the Minister has to say on this whole theme and on the other important issues that noble Lords have raised.
Baroness Merron
The Parliamentary Under-Secretary for Health and Social Care
My Lords, I express my gratitude to noble Lords, not just for their amendments but for the way in which this debate has been conducted. I appreciate much of what lies behind the contributions and amendments today.
I first turn to Amendment 33, tabled by the noble Lord, Lord Scriven, and supported by the noble Baroness, Lady Hollins, and also Amendment 150 in the name of the noble Lord, Lord Adebowale. All of these were spoken to throughout this group, including by the noble Baronesses, Lady Tyler and Lady Murphy. I noticed that Amendment 150 was particularly referred to by the noble Lord, Lord Patel, and the noble Earl, Lord Howe.
On the matter of data collection, I absolutely share my noble friend Lord Beamish’s view on its importance, the need for the visibility of data and the need to find out what is behind detention. However, I can give the reassurance that the data and statistics that were referred to are being collected and published. They will continue to be monitored and published monthly in the assuring transformation statistics for learning disability and autistic people, and I hope that will be helpful to my noble friend.
The amendments I am referring to, which the noble Lord, Lord Scriven, introduced, require the Secretary of State to publish plans within a specified timeframe, outlining the Government’s plan to allocate sufficient resources for the commissioning of services for the detention and treatment of autistic people and people with a learning disability, as well as costed plans which show how integrated care boards and local authorities will ensure provision of adequate community services for these groups.
I understand the concerns behind the amendment, emphasised by the noble Baroness, Lady Tyler, and the calls for, and the importance of having, a clear plan for resource allocation and service provision—these have been broadly emphasised in the course of the debate. The plan referred to will form part of the items that support the Bill, through an implementation plan, but due to the uncertainty around future funding arrangements, we do not think these amendments will meet their intended purpose. This amendment could, for example, force the government and/or local areas completing their planning processes to set out unfunded or somewhat speculative plans ahead of any funding settlements, and, as such, those plans would lack credibility. I suggest to noble Lords that it would be more effective to set out plans when they are ready, as opposed to following a somewhat arbitrary timetable set out in legislation.
The noble Lord, Lord Scriven, asked about upfront funding and the references in the impact assessment, and the timing of policy changes. The timing of the policy changes is illustrative; it is for modelling purposes, to give us the firmest baseline data from which to model the costs associated with the reforms.
Updating our assumptions on the number of autistic people and people with a learning disability who may require detention under this Act within the amendment’s four-month timescale is very unlikely to yield different figures from those in the impact assessment that has already been published. We simply do not expect that there will be significantly different data in this timeframe, which relates to the point raised by my noble friend Lord Beamish. While I understand the need for pace, it is also about getting it right.
I must also stress that sufficient community services for autistic people and those with a learning disability cannot be achieved without wider system reforms that go way beyond health. As such, the details in any plan have to be considered in the context of the 10-year plan, which is ongoing and in its consultation phase. We are also looking forward, of course, to the commencement of the independent commission into adult social care to be chaired by the noble Baroness, Lady Casey.
I gently remind noble Lords that we will have the opportunity to discuss implementation more fully as part of a wider discussion in a later Committee session, but, in my view, this is a helpful discussion because I am sighted on areas of legitimate concern raised by noble Lords. My officials will be engaging with expert stakeholders and other government departments to ensure that there are robust plans being developed and subsequently put in place. While I cannot commit to specific timeframes for publication, I am happy to keep the House updated, and I know the House will continue to give proper scrutiny to this matter.
I now turn to Amendment 34, tabled by the noble Baroness, Lady Barker, on the topic of mandatory training in diagnosis and treatment of autistic people and people with a learning disability for those who have treatment and diagnostic responsibilities. Like the noble Earl, Lord Howe, I agree that it is essential that professionals have the skills and knowledge to make an informed diagnosis so that appropriate care and treatment are provided. The Health and Care Act 2022 requires that all CQC-registered health and adult social care providers ensure that their staff receive specific training on learning disability and autism. As the noble Lord, Lord Kakkar, said, this training must be appropriate to the staff member’s role, to help ensure they have the right knowledge and skills to provide safe and informed care. While understanding the intention, we believe that the amendment is unnecessary, given the existing statutory requirement on health and care professionals that exists in other legislation.
The noble Baroness, Lady Barker, raised a specific point about specialist training, asking where the development of training was up to and who is responsible for ensuring its content. Providers are responsible for ensuring that staff receive sufficient training that is appropriate to their role, and that may well mean additional training beyond the Oliver McGowan mandatory training on learning disability and autism. As we know, additional training may come from a diverse range of sources, including, for example, training on child intellectual disability psychiatry or overmedication. NHS England is rolling out a national autism trainer programme in mental health services, and it commissioned the Royal College of Psychiatrists to deliver the national autism training programme for psychiatrists. That will reduce diagnostic overshadowing and it is intended it will play a significant role in preventing unnecessary admissions for autistic people to mental health hospitals and improve appropriate care for those with autism—I share concern about this important matter.
Baroness Barker
Liberal Democrat Lords Spokesperson (Voluntary Sector), Deputy Chairman of Committees, Deputy Speaker (Lords)
5:30,
20 January 2025
This is a key point for a lot of the amendments that noble Lords have asked about. Can the Minister write to all noble Lords with more detail of the training programme—its content, the timetable, who is going to be responsible for making sure that it is implemented and reviewed? Will she specifically deal, in that letter, with my question about whether tier 3 training is included?
Baroness Merron
The Parliamentary Under-Secretary for Health and Social Care
I would be very pleased to write to noble Lords, as the noble Baroness suggests.
Amendment 42A, in the name of the noble Baroness, Lady Browning, which the noble Lord, Lord Kakkar, also spoke to, relates to appropriate expertise in learning disability and autism for medical practitioners with responsibility for recommending admission for treatment. We strongly agree with the principle of this amendment. The current code of practice sets out that, where a patient is known to belong to a group for which particular expertise is desirable, at least one of the professionals involved in their assessment should have expertise in working with people from that group wherever possible. The code also makes clear that consideration should be given to any disability the person has in order that the assessment has regard to that in the way that it is carried out.
The noble Baroness, Lady Browning, asked further about how the Bill will make sure that professionals have the right skills and expertise. This whole area rightly comes up repeatedly when we debate.
I accept that it is crucial that those with a learning disability and autistic people are dealt with sensitively and professionally. It is crucial that clinicians are able to make distinctions between a learning disability or autism and any co-occurring mental health disorder—that point was made powerfully. It is a matter for clinical judgment to determine whether a person with a learning disability or an autistic person meets the criteria for detention under Part II, Section 3 due to a co-occurring psychiatric disorder. To assist clinicians in decision-making, we will update the code of practice to provide the guidance that will be necessary, and I hope that that will make a major change.
Baroness Browning
Conservative
I am grateful to the Minister and very encouraged by her response. I want to flag up something else that I raised. Occasionally, at some point of crisis for undiagnosed adults, the question is asked: could this be autism? At that point, we need people who have a very good working knowledge for them to raise that question, because it can make a world of difference if they are right. It is not just about somebody who presents with a diagnosis; it is about those who are undiagnosed. I do not know the quantity, but my gut feeling is that there are quite a lot of adults out there who are still undiagnosed. I do not know how the Minister will accommodate that situation.
Baroness Merron
The Parliamentary Under-Secretary for Health and Social Care
The noble Baroness makes a good point. Indeed, not everybody has a diagnosis. I suggest that, when we look at provisions, we should make clear—through the appropriate means and not in primary legislation—how the practice should take account of the point that she made very well. I will be extremely mindful of that.
We believe that the code of practice is the most appropriate place to articulate the type of experience that might be required in this area, through a non-exhaustive list of practical examples, which would avoid the need to define in primary legislation exactly what constitutes sufficient experience. The reason for that is to allow flexibility on the particular needs and circumstances of the individual. As we update the code of practice, we will engage with expert stakeholders to improve practice and to reflect the new Act. The code will be laid before Parliament before its final publication. I thank the noble Baroness, Lady Murphy, for her comments in this area.
The number of long-term detentions was rightly raised by my noble friend Lord Beamish and the noble Baronesses, Lady Murphy and Lady Browning. The number of people with a learning disability and autistic people in mental health hospitals is indeed unacceptable. Too many people are still being detained who could be supported in their communities with the right provision. Work is under way to address this. For example, NHS England has allocated £124 million of transformation funding for services, which includes funding to reduce reliance on mental health in-patient settings. Noble Lords can be reassured that I will take a particular personal interest in this area.
Lord Beamish
Labour
On that point, I welcome what my noble friend the Minister has announced, but the real problem is about housing, including specialist housing in different areas for individuals leaving secure units. That is not universal throughout this country, as people leaving mental health units are then having to travel long distances. Surely we need local plans, and that money going in locally to provide the housing needed.
Baroness Merron
The Parliamentary Under-Secretary for Health and Social Care
My noble friend makes a good point about housing; we discussed it on day 1 in Committee. We are working with our ministerial colleagues who deal with housing on the need for the right kind of housing to be available. The point was well made and is taken.
Amendment 145, in the name of the noble Earl, Lord Howe, and supported by the noble Lord, Lord Kamall, relates to a review on mandatory training for professionals with responsibility for treating people with a learning disability and autistic people under the Mental Health Act. We absolutely recognise the importance of monitoring the training that staff undertake. For example, I am pleased that a long-term evaluation of the delivery and impact of the Oliver McGowan mandatory training has been commissioned. As noble Lords may know, this training has been developed and rolled out to support providers to meet the Health and Care Act requirement that I referred to earlier. The findings of the evaluation, taking place over three years, will be a great help to us in understanding how it has been implemented and its impact, because there is a lot of reliance on, as well as reference to, that training.
The Health and Care Act 2022 requires the Secretary of State to issue a code of practice to guide providers in meeting this training requirement, and legislation already requires the code to include information on monitoring and evaluation. The Health and Care Act 2022 requirement builds on existing responsibilities, and ultimately requires providers to determine what training is appropriate for their staff and to provide such training, given their role. The broad scope of this requirement, and the wide range of staff roles and care settings, means that the training undertaken to fulfil it could be highly varied and could differ from person to person. That gives rise to practical challenges for monitoring compliance.
As we seek to address this, we also want to guard against creating something of a “tick list” of required training, which would, inadvertently—I stress, inadvertently—undermine responsibility for determining appropriate training. It is also important to note that, when assessing services, the CQC will check whether the Health and Care Act requirement is being met and may take action if it is not. Given the range of activity already under way, and while we understand what lies behind the amendment, we believe that it is not required.
Finally, Amendment 152, tabled by the noble Baroness, Lady Bennett, would require regular reports to be published on the resources available to support research into mental health care for autistic people and people with learning difficulties, including those who may be detained under the Mental Health Act, and on the adequacy of training for staff in new approaches to mental health care for those groups of people. I agree with the noble Baroness that these are important matters, because we need to be able to update and improve practice as the evidence base develops.
The department invests in research through the National Institute for Health and Care Research, which welcomes funding applications for research into any aspect of human health and care, including on the mental health care of those with learning difficulties and autistic people. Those applications are subject to peer review and judged in open competition, and awards are based on the importance of the topic to patients and health and care services, as well as value for money and scientific quality.
There would be a welcome for applications relating to learning difficulties and autism in respect of NIHR programmes, which would enable maximum flexibility both in the amount of research funding a particular area can be awarded, but also the type of research that can be funded. Information on this is on the NIHR website.
Baroness Bennett of Manor Castle
Green
5:45,
20 January 2025
I understand that the Minister may wish to write to me on this, but I wonder whether there is a real prioritisation of those experts by experience guiding that research, and what input there might be. If the Minister can write to me, that would be fine.
Baroness Merron
The Parliamentary Under-Secretary for Health and Social Care
I would be pleased to write to the noble Baroness.
As I set out in response to other noble Lords, I hope the Committee has heard how much I agree that the adequacy of training is a key issue. We are aware that developments in best practice in caring for people with a learning disability and autistic people need to be reflected throughout. As I set out, the Health and Care Act 2022 requires that staff be given the training appropriate to their role, and we expect that this should be reviewed in line with the up-to-date situation. The CQC assesses staff training as part of its regulatory function. For these reasons, I ask the noble Lord to withdraw his Amendment.
Lord Scriven
Liberal Democrat Lords Spokesperson (Health)
My Lords, I thank noble Lords who have taken part in this useful and informative debate, and I thank the Minister for a thorough explanation of what happens. However, there does seem to be a disjoint between what is happening on the ground and what people in an office in Whitehall seem to think is happening. That is why noble Lords have discussed issues to do with data, training, a costed plan, research and development, and the implementation of people who at least have training and an expertise in diagnosis. Something just does not feel right. The Minister has explained what is happening, but without a fully costed plan up front, with targets, accountability and data ongoing, what will happen is what happens now. Things will be diverted and diluted, and we will not be able to hold the plan to account. For that reason, while I thank the Minister for the explanation she has given, I feel that we will return to this issue at a later stage to dig down and get that deliverable framework. In the meantime, I beg leave to withdraw my Amendment.
Amendment 33 withdrawn.
Amendment 34 not moved.
Clause 4, as amended, agreed.
Amendments 35 to 37 not moved.
Clause 5: Grounds for detention
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