Business of the House

Part of the debate – in the House of Commons at 2:11 pm on 26th September 2019.

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Photo of Jacob Rees-Mogg Jacob Rees-Mogg Lord President of the Council and Leader of the House of Commons 2:11 pm, 26th September 2019

The issue with Max, who has Batten disease, is one of the greatest difficulty, and I am so pleased that the drug is now being made available, but I agree with my hon. Friend that there is a need for greater debate and discussion on the availability of medicines for rare diseases. Again, I think it is a Back-Bench business matter, but the Government are taking it seriously, and I am grateful to NHS England for finding the funding so that Max can get the drug he so needs.