Business of the House

Part of the debate – in the House of Commons at 2:11 pm on 26th September 2019.

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Photo of Dr Caroline Johnson Dr Caroline Johnson Conservative, Sleaford and North Hykeham 2:11 pm, 26th September 2019

I know how hard my right hon. Friend works for his constituents, but perhaps there is one he has worked especially hard for, and that is his constituent Max, who has Batten disease and needed Brineura, an important drug for this rare and very unpleasant condition, which ultimately would lead to his death if he did not have the drug. My right hon. Friend asked an urgent question on this before the summer recess, and just after the Prorogation ceremony we heard from NHS England that this drug will now be available. Does he feel that a debate on the rare diseases protocol would be beneficial in ensuring that other people do not have to wait as long as Max?