National Institute for Health and Care Excellence

Part of Health and Social Care – in the House of Commons at on 7 May 2019.

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Photo of Lyn Brown Lyn Brown Shadow Minister (Treasury)

The Secretary of State will know that Maryam is now nine months old. We have been waiting nine long weeks for NICE to announce a decision that I am told it has already made. Spinal muscular atrophy babies have been waiting 16 months for the care they need, which is longer than many SMA babies live without treatment. There is another closed-door meeting tomorrow. If NICE finally decides to provide Spinraza on the NHS, how long will it be before Maryam and the other babies get their first dose?