Engagements

Part of Prime Minister – in the House of Commons on 13th March 2019.

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Photo of Lyn Brown Lyn Brown Shadow Minister (Treasury)

As I told the Prime Minister a month ago, my constituent Maryam was diagnosed with spinal muscular atrophy 1 —SMA1—in November last year when she was just four months old. She needs Spinraza now and is likely to live only a few months without it. NICE met last week but, cruelly, to date has not even announced a decision. Last time, the Prime Minister told me to see a Minister—I did, and nothing changed. All I am asking is that baby Maryam has the same chance of getting Spinraza as she would have if she lived in Scotland, Germany, Italy, Romania or 20 other European countries. Let me be clear: I am asking the Prime Minister to intervene. Will she?