Engagements

Part of Oral Answers to Questions — Prime Minister – in the House of Commons on 20th February 2019.

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Photo of Eleanor Smith Eleanor Smith Labour, Wolverhampton South West

Before going into my question, may I say a few words about our colleague Paul Flynn? I went to Bangladesh with him and his wife and it was absolutely lovely. He was a very nice person and surely will be missed. I give my condolences to his wife, Sam, and hopefully she will get in contact with me as soon as she can. Thank you.

Right, Prime Minister: Heidi Prescott is a little girl who is my constituent, and she was born with a rare muscular wasting spinal disease called spinal muscular atrophy. She is 10 years old and her condition is worsening. Heidi is now losing the ability to walk and is spending most of her time in a wheelchair. There is a treatment that could help Heidi, slow down the deterioration and prolong her life; it is called Spinraza. It is not available in England but will be in Scotland in April 2019. Why can this treatment not be accessible to my constituent Heidi and other children in England with this disease?