Engagements

Part of Oral Answers to Questions — Prime Minister – in the House of Commons on 13th February 2019.

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Photo of Lyn Brown Lyn Brown Shadow Minister (Treasury)

Maryam is just six months old, and she is beautiful. She was recently diagnosed with a devastating form of muscular dystrophy. Her brother had the same condition and died tragically young. Spinraza is a new and highly effective drug produced by Biogen that is available in 23 countries, but not in England. If Maryam lived in the west of Scotland instead of West Ham, she would get it. Negotiations between the National Institute for Health and Care Excellence and Biogen have been unsuccessful, leaving Maryam and two other babies as tiny pawns in an argument about price and profit. Will the Prime Minister please intervene and help prevent Maryam and others from suffering an early and painful death?