Topical Questions

Part of Oral Answers to Questions — Health – in the House of Commons at 12:00 am on 19th December 2017.

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Photo of Jessica Morden Jessica Morden Opposition Whip (Commons) 12:00 am, 19th December 2017

Those with erythropoietic protoporphyria cannot be exposed to sunlight or even some artificial light without extremely painful and violent skin reactions. Trials of the drug Scenesse have proved life-changing for constituents such as James Rawnsley, who, for the first time, can now take his kids to school and go on holiday. The decision to make it available on the NHS will be taken soon. Please will the Minister look at it?