Event Monitor Hypoxia Study
John Hemming (Birmingham, Yardley, Liberal Democrat)
To ask the Secretary of State for Health if she will ensure that medical information stored in special case files held by Professor David Southall as part of the NHS-funded research relating to the Event Monitor Hypoxia Study and continuous negative extrathoracic pressure is copied into the patients' NHS medical files; and if she will make a statement.
Andy Burnham (Minister of State (Delivery and Quality), Department of Health; Leigh, Labour)
Decisions about disclosure of medical information to clinicians for incorporation within medical records are the responsibility of the individuals to whom the findings relate. Researchers owe these individuals a duty of confidentiality. They are expected to clarify (either in advance, or where practicable, through subsequent contact with affected research participants) whether the individuals consent to the disclosure of the relevant information.